Skip to main content

Belonging/ Soul Therapy

Day 4
Belonging

There is this "club." You join this club when you are a parent who loses a child. You don't have a title as an official member- there isn't one. You join silently. You don't get a big ceremony with other members. You quietly meet them by finding them in areas of your day to day life, and you share a sad knowing smile. You feel their support and you find some solace in the fact that they are the only ones who "get it." No one wants to be in this club. I hate it. But i don't get to quit or unjoin, and I am a known member. Other people in my life now treat me as a known member. When i meet new people, i have a choice to reveal my membership upfront, or have it revealed later,  because at some point, with any real relationship, it will be.
There is a sense of separateness within me. Often it is imagined and created by myself. How do I relate to people now? I don't know. Not yet.. I'm still figuring out who I am now. It's only been 6 months. I find acceptance in the club, but it is also the most depressing club ever.

Day 5
Soul Therapy

What is good for your soul? It used to be easy. It was dance and art in general. This has shifted over the years. The other night i went to Zumba. I hadnt danced or moved like that in a long time. It felt good. I felt my soul was lighter afterwards for a little while.
Music is good for my soul. I try to listen and sing along as much as i can.
Family. Clinging to my family is so necessary. If i didn't have them to remind me to keep going, do my best... i would be a bigger mess than i am.  And I'm not doing that great right now! They are my reason to get up each day and try again.


Comments

Popular posts from this blog

Unanswered

This coming week is going to be a full one, with lots of big appointments and also the usual fanfare thrown in for good measure. To update, Loie has indeed been discharged from her home health care nurse :( Sad face, only because we love Sami and will miss her boisterous personality coming through our door, giving us helpful advice, smiles, and always confident hope! Thank you Sami for seeing us through the rough transition from NICU to home. You have been our training wheels so to speak, and you are not just a nurse, but you are a mom who "gets it" too. I can't believe it has been six months since we took Loie home from the hospital.... Loie weighs exactly 13 pounds now, as of her latest appointment. She had a brief time where she was teetering and even lost a little bit of weight, because we've all been hit hard with autumn-time illnesses. Poor Lennon woke up one night, on FIRE with a 104 degree fever-turns out was caused by strep throat. :( Loie developed a rattl...

This is our normal

A snapshot of our week: Home health care nurse visit Neurology eval Pediatrician followup Infant toddler program visit Occupational therapy .... that was the first day... Next day was ophthalmology followup (every two weeks) more OT Norco medical supply delivery (twice because at 9 pm the oximeter went kaput and they did a night delivery) And so on. I am in a constant state of worry that I've forgotten some important appointment. Ah the life of a "medically fragile/complex" family! Loie is growing! She met her last weight goal, low side, but still met it! She's at 7 lbs 12 now! Struggling to increase her volume of intake cause she spits up a TON and gets refluxy. She has started smiling at her jingly toys! She likes the sound I think :) this is a huge deal to us! Seeing her smile is another big milestone and we are grateful for each one! She also lifts her head really well during tummy time! No "cooing" yet, which is ok cause really she's ki...